Talks WithMS
No matter how MS affects you, we're here for you every step of the way.
What is Talks with M.S
Talks with M.S. acts as a big brother/big sister platform and registered charity that aims to support and empower people with Multiple Sclerosis. It was founded just 7 months after a March 2016 diagnosis. It allows people with MS to speak freely with others that know exactly what they are going through based on lived experiences.
Our vision and mission is to enhance the prominence of multiple sclerosis (MS) within the UK, with a particular emphasis on the underrepresented black community. We strive to promote greater representation and inclusion, ensuring that we are actively part of this ever-expanding and inclusive world.
We pride ourselves in enhancing the awareness and understanding of multiple sclerosis (MS) while offering valuable advice and support based on lived experiences.
What We Do
Peer Support Groups
Connecting people with MS to share experiences and support one another based on lived experiences.
Information & Advice
Webinars and in-person events providing valuable information and advice on MS.
Advocacy & Campaigning
Promoting greater representation and inclusion for the MS community, with emphasis on the underrepresented black community.
Our CEO
My name is Terri-Louise Brown. I am a mummy to a teenage boy and I am the CEO and founder of Talks With M.S., which is 1 of 2 black-led Multiple Sclerosis based registered charities in the UK & Ireland.
I am:
- •A published author
- •The Head of Marketing programmes for Sistas in Sales
- •The owner of a CBD range curated to tackle pain & anxiety
- •An accessibility / disability consultant
I was diagnosed with Relapsing Remitting Multiple Sclerosis in March 2016 after becoming paralysed from the waist down and the rest has been a colourful journey.
I am a sibling with MS. When my younger brother Daniel was diagnosed in 2010, he was a young black man who felt isolated because of a disease we knew minimal about. I did not want anyone else to experience this. In November 2016 when I created Talks With M.S., I was in pain both physically and mentally, but I knew I needed to create a community I wish Dan had when he was diagnosed.
Our History
2016
Talks with M.S was born
Created a platform on the back of a Facebook post informing people of the diagnosis. Filmed a documentary about the diagnosis journey, premiered to over 150 people at the Rich Mix cinema in London.
2017
First Support Group
First ever in-person support group hosted at home.
2018
Our 1st Event
Hidden Disability Event at Westminster Kingsway College — hosted a stall and spoke to over 3,000 students. Created a Bitesize MS FAQ Booklet.
2020
Published Author
Wrote & Published 'Paralysis to Heels — A beautiful struggle' and held a book launch attended by over 100 people.
2022
Brands Growing
Created MS & Life Learn and Chill sub-brand for in-person events. First post-lockdown brunch with over 30 people diagnosed with MS. Collaborated with the MS Society for Black Community webinars.
2023
Our 1st Retreat
Became an official registered Charity. Started a UK tour of Learn & Chill sessions. Hosted a stall at the Disability Expo. Overnight retreat for 26 people.
2024
Going International
The hard work continues — 1 year old as a registered charity and expanding internationally.
We are a growing community of 1,686 people either with Multiple Sclerosis or allies.
Join the family and be part of the journey.
Visit talkswithms.co.uk